We are on a timeline to initiate enrollment in the fall of 2014. This is
barring any unanticipated regulatory delays.
The subjects will need to have had genetic testing which identifies a
disease-causing DNA change in the choroideremia gene. Otherwise, there
will be no chance of benefit. Genetic testing can be carried out on a
blood sample. In addition, subjects will need to meet the inclusion
characteristics of the study (pending evaluation by local and federal
regulatory authorities).
Network with patient advocate groups relevant to your condition, such as
Foundation Fighting Blindness, Choroideremia Research Foundation,
Foundation for Retinal Research; Assist in fundraising efforts to support
the research and clinical trials.
Undergo evaluations with a retinal degeneration specialist. Obtain
appropriate genetic testing to identify the cause of the condition. Obtain
up-to-date information and support from patient advocate organizations
(see above). Volunteer for clinical research studies if appropriate for your
condition and if you agree to assume the potential risks.
There are no charges for participating in our clinical trials. Travel,
lodging and food costs are covered, including those of an accompanying
person. There are no charges for the clinical testing or intervention.
No. While it can be easier on the subject/family to live in the vicinity
since there may be significant travel obligations, we do not have
limitations based on citizenship or homeland.
If you are interested in participating in non-invasive imaging studies,
please contact Dr. Jessica Morgan ([email protected]) or Manzar Ashtari ([email protected]). If you are interested in participating in our clinical trials, please contact the coordinator listed on the relevant www.clinicaltrials.gov website.
Please send information by fax (215-573-7155) or mail: Dr. Jean Bennett,
University of Pennsylvania, 310 Stellar-Chance Labs; 422 Curie Blvd,
Philadelphia, PA 19104.
*** Parking is challenging! Public parking can be found at *****
Penn Tower; 300 South 33rd St, Philadelphia, PA 19104
119 S. 38th Street, Philadelphia, PA 19104 (Walnut and 38th St)
3335 Chestnut St, Philadelphia, PA 19104 (Chestnut and 34th St)
Penn Park; 3100 Lower Walnut St, Philadelphia, PA 19104
Patient Parking (including valet parking) is available at PCAM; 3400 Civic Center Blvd; Philadelphia, PA 19104}
Directions to Stellar-Chance Labs; 422 Curie Blvd; Philadelphia, PA 19104-6069
From I-76 (Driving)
Take exit 346B toward University Ave
Merge onto S 34th St and continue onto S. University Ave (0.2 mile).
Turn right onto Curie Blvd.
422 Curie Blvd will be on the left.
From Amtrak 30th Street Station, Philadelphia, PA (Walking; 1.3 miles)
Walk away from Center City on Market St
Turn left on 33rd St (0.4 mi)
Continue onto Civic Center Blvd (0.2 mi)
Turn right onto Osler Circle (0.1 mi)
Turn left onto Curie Blvd
422 Curie Blvd will be on the right.
From Septa University City Rail Station (Walking; 0.4 miles)
Head west on Spruce St
Turn left onto S 34th St (0.1 mi)
Slight left onto Civic Center Blvd (0.2 mi)
Turn right onto Osler Circle (0.1 mi)
Turn left onto Curie Blvd
422 Curie Blvd will be on the right.
Directions to Perelman Center for Advanced Medicine; 3400 Civic Center Blvd; Philadelphia, PA 19104
From I-76 (Driving)
Take exit 346B toward University Ave
Merge onto S 34th St and continue onto S. University Ave (0.2 mile).
Turn right onto Civic Center Blvd.
3800 Civic Center Blvd will be on the right.
From Amtrak 30th Street Station, Philadelphia, PA (Walking; 1.3 miles)
Walk away from Center City on Market St
Turn left on 33rd St (0.4 mi)
Continue onto Civic Center Blvd (0.2 mi)
Turn left onto Health Sciences Dr (30 ft)
Turn right onto Civic Center Blvd
3800 Civic Center Blvd will be on the left.
From Septa University City Rail Station (Walking; 0.4 miles)
Head west on Spruce St
Turn left onto S 34th St (0.1 mi)
Slight left onto Civic Center Blvd (0.2 mi)
Turn left onto Health Sciences Dr (30 ft)
Turn right onto Civic Center Blvd
3800 Civic Center Blvd will be on the left.
F.M. Kirby Center for Molecular Ophthalmology
Stellar-Chance Labs 309 & 807
422 Curie Blvd.
Philadelphia, PA 19104-6100
Fax: 215-573-7155
Media Inquiries
Leeann Donegan, Penn Medicine Communications
215-349-5660
Vector Core Research Inquiries
Junwei Sun
iPSC Core Facility Research Inquiries
Jeannette Bennicelli
Patient Inquiries
FAQ
The Center for Advanced Retinal and Ocular Therapeutics, or CAROT, is advancing the development of novel biologic and small molecule therapeutics for retinal and ocular diseases through a balanced commitment to basic research, translational development, and the clinician/patient communities.
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